Today we had a conversation with Frank's casemanager/nurse. Goal of the conversation: updating the rehabilitation goals, some "rules", getting to know eachother.
The goal as defined by the treatment team is: independence in daily living and selfcare.
Needed to achieve these goals is:
- improvement of condition and endurance
- comfortable sitting in the wheelchair
- safe swallowing
The nurse told us that Frank still needs/wants a lot of rest, a half hour physical therapy per day seems to be enough. His condition is raised slowly and this week a new schedule will start, he has to stay up a longer and longer. When his condition and trunkstability has improved enough than the ergotherapie will start more intens and they will go and work on trying to have Frank make transfers.
The better Frank gets, the "less" they will do, they call it care with the hands on their back, which is a typical rehabilitation approach. Frank participated very adequately in the conversation, he indicated that until now he was content with his progress and that he felt his memory was improving substantially. He didn't say he was down or depressed, but just that he was very tired (afgemat).
The nurse also told that the department Frank is in, will move to fourth floor (dept 8) Frank will get a larger single room with his own bathroom. That will probably be at the end of this month.
Fun thing: franks casenurse happens to be also a fan of xena, do you believe that! So they had an instant connection.
To me it was a very positive conversation, and I had the feeling that it was for Frank too.
So up to independence.
Thousend times thanks!
To all the followers of the blog, to anyone who has been supportive of Frank or us in the last months and especially after his untimely death we want to say thanks from the bottom of our hearts. In the week after his passing we received so much warmth, stories, care and love, hardly describable. To us it was a very precious and valuable week and it was so good to have Frank at home where so many of his friends could visit him. And all the help, stories and info shared in that week led to a beautiful goodbye ceremony on a beautiful sunny autumn day. For those of you who could not attend, or those of you who wish to reread the funeral speeches, we publice them here (in dutch and english) with some pictures in grateful memory of, and tributed to Frank.We will miss him dearly, thanks for being with him and with us, one way or another,
On behalf of my family and his closest friends, Esther