So what is life like in the SMK? Therapy, therapy and therapy! And what a difference within a few days. It feels like Frank is regaining his confidence that it will work out one way or another. Yesterday we had an intake conversation with the neuropsychologist of the department, and she understood very well the importance of wargaming for Frank so she immediately grabbed on to the idea of training strategy so that Frank can return to play on the club. Frank will be evaluated thouroghly on neuropsychological functioning and guidelines will come out of it. I expect especially on attention for the left side and on shifting attention. That, to me are the things that need improvement.
After the psychology meeting we went to what is called the movement agogue (agoog) This are people who offer patients in the SMK all kinds of physical activities for play and fun. We were in a huge gymnasion and one group of patients were busy with archery, on which Frank immediately commentend that he wanted to participate in that too. But being a one armed bandit, you all understand, that pulling the bow isn't exactly the easiest thing you can imagine, so I presume they work out something else.
Yesterday in the afternoon Frank recieved a new wheelchair, a so called trippelchair, which means that you walk the chair instead of moving it with your arms. Today I went over there to look at it and when I came in Frank was in bed, surrounded with a lot of visitors. He expressed the wish to get out of bed to show us how he managed in the trippelchair. See him taking initiative is so very good again! So we called the nurse and took Frank out for a "walk", he trippeld all the way to the rondeel and to me it appeared that he was very proud of it. And after returning to his room he was very active during the changing of his clothes to pyama. He helped, moved his body, asked questions. Very good to see.
And although Frank complains much about fatigue, he was very awake and lively. I have the idea that his attention span and endurance still is limited and fluctuates througout the day. He also complains about bad sleeping. I hope that the hard work during the day will make that a little easier.
Another very nice thing about the SMK is that Frank can invite people over for diner. You have to be there around 17.00 and Frank has to order an extra meal for you. It appeares that he has ordered two meals for tomorrow, without consulting anyone, so I will have dinner with him. But I suggested that he could invite friends over for diner. If there is more than one extra person, you get vouchers and you can all go and eat in the rondeel. So for anyone who like to have dinner with Frank, just call and make an appointment (see contact details on the second page of this blog). I'll notify the SMK in case the casus belli club will come ;-)) and join for dinner and some game in the rondeel (a very good alternative location for clubgaming to my opinion, a lot of round tables). They will know Frank is there with his friends!
And finally, the Ipad is almost there! Today it was brought to my house, but I wasn't allowed to recieve it, because franks name was listed to the account (not mine). I wasn't allowed to accept it although I had his and my passport, arghh. I explained the situation, asked the guy to drive over to the SMK, "no ma'm' I'm not allowed to deliver it to another adress". So quite pissed of, in the end I decided to change the subscription name to the account. Again, too bad, it will take another few days. And knowing Frank is really longing for the Ipad I can hardly bare the postponement, so much for bureaucracy!!! I hate it.
I hope Frank has a good night sleep and remember, Bistro Chez Frank's is open for buisiness. Allo allo, Have a nice meal!
Au revoir et bonne nuit Esther
Thousend times thanks!
To all the followers of the blog, to anyone who has been supportive of Frank or us in the last months and especially after his untimely death we want to say thanks from the bottom of our hearts. In the week after his passing we received so much warmth, stories, care and love, hardly describable. To us it was a very precious and valuable week and it was so good to have Frank at home where so many of his friends could visit him. And all the help, stories and info shared in that week led to a beautiful goodbye ceremony on a beautiful sunny autumn day. For those of you who could not attend, or those of you who wish to reread the funeral speeches, we publice them here (in dutch and english) with some pictures in grateful memory of, and tributed to Frank.We will miss him dearly, thanks for being with him and with us, one way or another,
On behalf of my family and his closest friends, Esther